Looking for answers to life's questions

Posts tagged ‘Pulmonary Fibrosis’

Where to start

It would seem an easy decision. It is not. This month has been so busy that I didn’t know how much to tell you about or where to start. I guess I’ll start with a day trip my sister and I took.

I’ve lived in my house for three years  and my apartment for two after visiting Portland many times over the previous 20 years. My sister has been my  tour guide, knowing this area like few natives do. Driving for Tri-Met (Portland’s city bus co.) for 15 years gave her an advantage not many have. Her passengers were always treated to a dialog of great information about the city if they were from out-of-town.

Beautiful wood carving

Her daughter has been accepted into the honors program at the University of Denver in the fall and sis is going to help get her settled. Yes, sis came to parenthood very late in life in a nontraditional manner but the deep love and caring are just as intense.

my sister at the mt

Little sister in front of Mt Hood

As a precursor to the upcoming trip to the mile high city, sis thought it would be wise to observe how well she could handle the altitude. Given her geriatric age (I’m sorry little sister, I just had to) and the fact she has pulmonary fibrosis, I agreed. So off we went to somewhere she had never taken me to see. The infamous Mt. Hood. It is a potentially active stratovolcano in the Cascade Volcanic Arc of northern Oregon according to Wikipedia.

getting close

Almost there. Nice highway to it.

 

I see it clearly every time I drive down the main street to my neighborhood. It’s quite impressive all covered in snow. But I couldn’t photograph it well while driving.

Only an hour from my home, the ride was not difficult. Sis does all the driving since I can’t go that distance anymore. It was a beautiful day and the scenery was lovely. I must say though, when we got there, I was not quite as impressed. Being on the mountain is very different from looking at it from a distance.

not so impressive

High desert is just like where I lived in Arizona. Not so impressive close up.

Timberline Lodge was built by the WPA in 1936 to 1938 and it’s beautiful. We had a rather expensive buffet lunch where I ate my money’s worth making it my only meal of the day. By the time we were done with lunch and started walking back to the truck, the 6000 foot elevation began to signal her it was time to drop down a few feet quickly.

Dining room for the buffet lunch. Good food and great view

I knew I could drive if necessary for a short distance though it turned out not to be required of me. Sis has checked in with her medical team to decide what can be done to make elevation a bit easier to do. There is no question she will make the trip to Denver. It was quite an eye opener for us. I lived at 7200 feet before moving here and neither of us had a problem at that time. Lungs are a delicate thing.

I have been busy enough that more will follow shortly. Have you had any experiences you have waited a long time to enjoy?

From my heart to yours,

Marlene Herself

In Search of Time

What is it about time that has us all in such a state? We are always running out of it or have too much of it on our hands. Often time seems to fly or it can drag on and on.

I like to read about all the changes in sciences perception of time. First they say that time is speeding up; then they say it’s slowing down. I’ve been reading a rather lengthy article on Wired Science by Sean Carroll to try to understand time a bit better. He has a theoretical physicists’ approach to understanding time. Here is a tiny excerpt._

The past is different from the future. We remember the past but we don’t remember the future. There are irreversible processes. There are things that happen, like you turn an egg into an omelet, but you can’t turn an omelet into an egg.

http://www.wired.com/wiredscience/2010/02/what-is-time/

It’s called entropy.

What I want to understand is why time slows down when you are waiting to get well but speeds up when you are in the company of great friends. I always have a long list of things to do which only gets longer as I check things off that list but I run out of time to get them done. If I’m looking forward to an event, time drags on till that moment finally gets there. Then miraculously the event is over before you can blink an eye. It’s like Christmas when we were kids versus Christmas when we are parents.

This year is supposed to be the end of time according to the Mayan calendar. How is that going to work? Maybe time will just seem different. I’m not too worried about it since I’m always running out of time anyway.
When I was raising kids, I would swear that I needed a 48 hour day. Then, while I was working in my office with not enough work to keep me looking busy, that day would feel 48 hours long. I kept checking the clock but for hours on end, it just didn’t move.

Time is the most precious commodity we as humans have. Animals do not care about time. I haven’t seen even one wearing a watch or checking the clock. I first became aware of the time crunch when my mother moved into her manufactured home next door to me. I was aware on some level that her illness was terminal. Pulmonary Fibrosis, also known as Interstitial Lung Disease, has according to the internet, a two-five year life expectancy. We didn’t know how long she’d had it before they diagnosed it. I spent every minute I could with her during that year while still trying to give her the autonomy she desired. Then they found a tumor under her ribs and let her know it was there. She was gone in seven days and I was rocked to my foundation. I wanted more time with her.

The following year I was diagnosed with the same illness that took my mother’s life. It showed up on the x-rays. That’s when time became something to be truly passionate about. I wanted more time and by gosh, I was going to get it. So I meditated daily and prayed hard. The next x-ray showed nothing. Maybe it was a flaw in the film. I didn’t care. That was 10 years ago and I had a bit more time.

But do we ever use that precious time wisely enough? How is it supposed to be spent? Like money in the bank, you have choices to make about your time. To me it’s more precious than gold though sometimes I fritter away my money as well as my time. Now when I want to be doing something creative, my body says “no, you must rest to make up for all the running this poor body into the ground.” Bells Palsy is here to give me time and take my time. I get to read long articles about time and to do the writing I’ve never had time for. Sometimes when I’m resting I feel like I’m wasting time. We were big on getting things accomplished in my family and resting was never on the list.

It seems the less time we have, the more precious it is to us. I spent the first 18 years with my family of origin minus one to recover from a trauma. The next 18 were spent with my first husband and our children. Although by then we had been divorced for 5 years, my first husband didn’t get enough time, passing from this earth at only 42.

I invested, not so wisely, the next 25 with the last husband that wanted all my time. I still didn’t have a clue as to how little time there was to accomplish so many things on my list. As I was leaving I declared that I was burning daylight. The rest is my time and I am using it carefully. Getting well is still at the top of my list of things to accomplish. Even if wellness never happens, I get to write, take classes on writing, read, garden, sew and spend time with family and friends that support and nourish me rather than drain me. I can also continue to give of my time and resources without restraint.

Time is an illusion.”
― Albert Einstein

From my heart to yours,
Marlene